It makes me stay at home, sitting on the edge of the tub, reflecting:
"Would I prefer to be out socializing more?"
"Yes," I reply, "the red wine would be nice!"

But they are not as joyful when one has to tack the word "treatment" onto them.
Never mind!
I'll rejoice that I have "Doak Oil" to use in the tub!

In my forehead every 3 weeks
And in my arms too.
But that was long ago
and oh so useless and senseless.

Can it be so tuff?
Immune system, excess skin production, 
chromosomes, mood swings, stress,
infection, cuts, sunburn, low sugar
What can the culprit be??

my bright red new lesions
I relax only when they fade.

me "How is your skin doing??"; then
I would say, "It is still a pain in the butt,
Or is that pain just in my gut?"
Or I would say, "It's not too 
bad right now, thanks."
Or would they let me
have a one hour response someday,
And tell the whole story!
No, probably not.
I have become a master of camouflage
Partial answers that say so little.

It has taught me to draw in and reflect,
It has let me be alone, in a peaceful way.
It has shown me where others can be very sensitive 
and where they mostly can't grasp it's magnitude.
It is my life, like it or not.

I fit them on my body!
I barely care about stares
I only panic when a new bunch 
of lesions arrive, to be dealt with.

Random thoughts
Random disease
Random pain
Random joy

It takes me down the road
To where I know not
But it has been a journey 
Of awareness, I can assure you.