Expert Panel:
Psoriasis for College Students Can Be a Real Heartbreak
a college student "speak-out" at the 2006 American
Academy of Dermatology meeting in San Francisco
by Lise Stevens
posted March 2006
On Raptiva
Ed's reflections after 6 months on the
biologic drug, Raptiva
posted July 2005
Capitol Hill Day
2005
Lobbying Congress for Support of Psoriasis
A personal recounting of the experience by
NPF's Director of Advocacy, Sheila Rittenberg
posted May 2005
Ed's Soriatane
Experience: March-June 2004
Simply put: "Not good."
posted July 2004
Thinking
About Biologics? Try Out These Links
Links to the "official" web
sites for the new biologic drugs for psoriasis and psoriatic
arthritis
Posted September 2004
Rebound
Diary - Part 2: Mar-Apr 2004
The rebound flair subsides ... Ed starts
taking Soriatane
Posted July 2004
Rebound
Diary - Part 1: Jan-Feb 2004
Being pulled off systemic
medicines for P, Ed chronicles his invariable rebound flare
Posted May 2004
Me,
My Enbrel, My Cancer: 91 Days of Coincidence
23 days into his Enbrel
therapy, Ed is diagnosed with testicular cancer. This is the
story
Posted May 2003
Teen
Talks at NPF Conference 2K2!
Lou Sommo reports on the
Youth Track tried for the first time
in Orlando at NPF's 2002 annual conference. It worked!
Posted October 2002
"Taking
the Waters" at Soap Lake, a personal experience
Here's Sheri Decker's bigger story about her trip to try out the healing
waters of Soap Lake, Washington
Posted November 2002
Dissertation
to Study Group Psychotherapy with focus on Stigma
Vicki Dowling describes her Ph.D.
dissertation research project. Added later: The Abstract
for the final dissertation
Posted March 2003
My Liver
Biopsy
A leisurely recounting of Ed's
experience of something most long-term Methotrexate users go through
Posted September 2002
What Do
You See?
A candid consideration of a Flaker's self-image, by
El G.
Posted September 2002
Dr.
Connolly’s Book Discovered
Ed's review of Psoriasis Can Be
Cured, by Robert Connolly, D.C.
Posted June 2001
Spots,
an essay by Anna E. Hess
A daughter's poignant observations of a mother's
fight with P.
Posted February 2001
Dewke
Cyclosporine Diary: 89 days (April 19-July 17, 2000)
Expensive, frustrating, poisonous ... but effective
Posted July 2000
Bear, an essay by
Dena Feldman
One woman's remarkable story about
coming of age as a chronic psoriatic.
Caution:
Mature themes and language.
Posted January 2001
Dewke Methotrexate
Journal: 1st 12 Weeks July 14, 1999 - October 11, 1999 (84 days)
Recounts experiences and impressions during first 12 weeks of
personally-feared Methotrexate therapy.
Posted November 1999
Bitching About
Itching
Controlling P would be so much easier
if they'd just invent something to turn off the itch!
Posted January 1998*
Intrigue at
30,000 Feet
Pulling the wool over the eyes
of a sympathetic fellow passenger.
Posted January 1998*
80% Club
For manufacturers of P-remedies, why is "80% effective" a
license to advertise misleadingly?
Posted January 1998*
My Role Model
A paralyzed friend showed me how life is best lived
"differently."
Posted January 1998*
Hands at Halloween
Reflections on the meaning of cracked and painful hands
at a spooky
time of year.
Posted January 1998*
* These articles were posted earlier than
January 1998 but revised in some
fashion on-or-about January 1998.
