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PsorChat
| PsorChat Review | ©2004 Ed
Dewke
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Amazing
Results from Soriatane Backstory:
It’s PRP, not P, and
Soriatane is Prescribed Ed: I'm
well into my 9th or 10th week on Soriatane and the results are amazing. I
am clearing slowly but I am clearing for the first time in 20 plus years
of having what I found was never Psoriasis but PRP. Misdiagnosis has kept
me in the dark for years and I had practically given up hope for better
skin or some type of remission. Well Soriatane — at this point — has
been a tough pill to swallow BUT it has been absolutely worth every
hardship. My side effects
started at day 3 — very dry lips — oh my gosh, Carmex has made a mini
fortune off of me. Then at around day 8-9 the peeling began — I
literally peeled and flaked every bit of skin that covers me. Both of
these maladies are listed side effects and if these bother you too much
... in my mind — and this may be controversial — your not in bad
enough condition to want it to get better. Sure — my
hands peeled terrible over the next week end and while working around the
house I just about took the skin down to nothing on my palms. Did it hurt
and was it inconvenient? Yep. But
three days later my palms were as smooth as a baby’s butt. Hair loss? Nothing
more than usual for a near thirty something male. Dry
skin? YOU BET. I'll be glad to
endorse Eucerin and the relief it brings, but I was already using this for
relief prior to Soriatane. I have noticed
unusual thirst during heavy exercise — and have noticed that I am
dealing with some nose issues. Not to get into the details but I just use
a tissue and rid myself of those pesky issues as well. My skin is
pushing 75% clarity. My coverage is reducing and once hidden areas are now
able to be shown — such as my forearms. I have worn long sleeve shirts
in terrible southern summers for about 6 years now because of an
aggressive patch on each arm. Now
I wear short sleeves without questions of "What’s
up with your arms?" ... "Is that poison oak?" ... “Why
are your arms so red?” ... “Is that contagious?" I don't have to
tell anyone here what these things are like. What I can share is what
relief is like. Whether the sun brings relief, or some systemic, or
biologic, or whatever: Relief
is golden and I worry about a rebound but doc says that PRP usually
doesn't act like psoriasis in the way that most P patients have tough
flare ups after strong medication. He
says that PRP, although rare and difficult to clearly identify, once
treated usually lays low for some period. Maybe
a lifetime. Man, I really hate
that so many can’t use Soriatane because it has given so much back to
me. I am thankful that it is working, I am thankful that it is not
terrorizing me with side effects, I am very thankful for insurance to pay
for this stuff, and I am thankful for this website to share my
experiences. By the way -
the blood tests reveal no side effects to liver and cholesterol as of yet.
I'll pray for this as well and I'll pray that more can get some type of
relief from Soriatane. I'll write again next month.
-Adam H. ***** [From Adam,
about a month later:] I hope that you
are finding similar results. The worst areas are still hold outs from
using Olux and Luxiq, from when I came off of these.
Man, my world was rough where ever I used them. I have found a
few 'new' side effects from Soriatane, but again nothing that is causing
great alarm. The big one is sunshine. This has been my friend for YEARS
and old habits are hard to break. I have always wanted to burn so that the
skin would slow down the flaking process. Well just as the Dr. AND the
label states, something happens to your skin on Soriatane that makes it
VERY sensitive to sun. Please do not make a long day of it without
sunscreen. I have never wanted
to limit my sun exposure because it has helped so much, but now I have to
use sun in moderation for tanning purposes only. For the first time in
years I am having to use sunscreen but I know this is better than my
previous regimen of tanning oil and long hours in the sun. I have now been
on Soriatane since 1/26/04 (3 months and some days in).
I can only pray that nothing takes a nose dive. I have started
every other month visits with my derm and next appointment is late May. He
seems to think that only 25mg is the answer for me and may or may not be a
long term resolution. I could come off of it or remain on for as long as
it helps. I am very, very happy and pray daily for continued
effectiveness, level blood work, and low side effects. Best wishes and
hope all is well with your course of treatment.
-Adam H. ***** Ed:
Thanks for sharing this with us, Adam.
It is good to hear from somebody who’s had the hoped-for results.
As I write this (5/15) I’m in week 9 and my P isn’t responding
as well as your PRP. In fact,
in the last few days there have been new side effects and an all around backslide
of the initial P improvement. I’m
not despondent over this, yet. This medicine
— more than any other I’ve taken for my P — has had a wide array of
effects on me, which suggests to me that it is influencing lots more than
my skin. I believe many of the
unpleasant effects are expected to self-correct over time (e.g., dry skin,
peeling palms, clamminess...). And
I’m trying hard to maintain your attitude; i.e., if I can’t put up
with these I don’t want to get better bad enough.
I DO want to
get better and I’m absolutely hell-bent to give Soriatane at least its
12 weeks. So I’m drawing no
conclusions until then. I’ll
report on my outcome in the July-August update of FlakeHQ.
In the meantime, I hope your remission is permanent.
Sounds like that’s a possibility with PRP.
And if it isn’t, hopefully your next round of Soriatane will be
less taxing to handle. Stay in touch, Adam. -Ed www.flakehq.com |